First and foremost, on behalf of Ava's Voice, our hearts are with all of those affected by COVID-19 and their families. This is a very confusing and unprecedented time for all of us. Many of our upcoming initiates for the remainder of 2020 provide face-to-face opportunities. Our Ava's Voice Board of Directors, with the guidance of the up to date information released by the CDC, will make decisions accordingly for those events. Our discUSH Family Weekend has been canceled. Our Biennial Gala has been rescheduled to Sunday, September 20th 2020.
We thank you for your patience and understanding during this time. We will keep you abreast of updates as decisions evolve. In the meantime, be safe, stay healthy and enjoy this unexpected quality time with your loved ones.
AVA'S VOICE PRESENTS
discUSH Family Weekend
An opportunity for families of children with Usher syndrome, birth to 10 years old.
Cost: Family Rate $650 Includes two adults and one child with Usher syndrome (birth-10 years old).
Family Rate Includes Single Family Cabins, Saturday Evening Social, Sunday Meals, Monday Breakfast & Lunch, Accommodations, Activities and discUSHions.
Additional Rates: Children birth - 4 FREE, 5 -10 $120, 11 and up $230
Resources: Usher Syndrome Coalition, National Center on Deaf-Blindness (NCDB), Ava’s Voice Ambassadors, Accessibility Advisors, DB Experts
"Shine A Light" Families will have an opportunity to have their portrait taken by the Usher Syndrome Society's world renowned photographer.
Our discUSHions will be facilitated by our Ava's Voice Ambassadors and USHthis Strength Coach, Rebecca Alexander. Rebecca is a psychotherapist and author, who was born in Berkeley, California, and currently resides in New York City. Rebecca wrote the book, Not Fade Away, about living with Usher syndrome type III. Throughout the weekend, families will have an opportunity to connect with Rebecca and our ambassadors in small group discussions about topics ranging from diagnosis to self care and advocacy.